The Never of it...
This is the reality of so many parents dealing with the affects of vaccine and antibiotic-associated brain damage (what some call autism). Have your tissues ready.
My friend Aneeta is made of stronger stuff than your average human. Don’t get me wrong, she feels things deeply - but she manages to handle it and keep going. So much so, that she took on the incredibly difficult and emotionally draining role of President of the Australian Vaccination-risks Network!
This morning, she sent me a series of screenshots with the following information from Teresa Holman, the mother of a beautiful young man named Britton.
I still haven’t stopped crying. So, of course, I had to share this with you.
Britton’s words - The never of it… spoke to me about the constant questions that every parent of a child who has been vaccine-injured asks themselves. What would this child be like today were it not for that damned vaccine? None of us will ever be able to answer that question and that becomes the never of it.
Yet as hard, as painful and as tragic as Britton’s story is, it is every day reality for hundreds of thousands of families out there. If yours is one of those families, I send you my love and my kindest best wishes. I don’t personally know what you go through every day despite having had a vaccine-injured child, but I have known enough families in this situation to understand how incredibly difficult it is.
Please read this and share it with your non-believing friends and family. It may not make a difference, but you never know.
When I was a kid…my heart had different hopes. That I would learn talking, be the same as kids. The never of it, made it die. But sometimes it does come back.” Britton
When Britton typed this…I held it close to my heart and then I went to my closet and knelt there with his iPad in my hands. I “showed it to God,” as if He hadn’t already seen it.
We cried together, Jesus and I. His presence came and I stayed there until I heard bath water turn on upstairs. Wiping my tears, I made a quick dash to see what I might’ve missed. I passed the bathroom mirror and stopped. Swollen red eyes, hair tied up on top of my head, nose running, dark circles. The never of it—time to care about what isn’t most important.
After typing such heart burning words, Britton jumped in the bathtub to self stim the water, and find joy in the feel of the hot and cold on his hands. Standing back I marvel at a person who can “say” something so deep, and then sit in the bath and laugh at the simplest of pleasures. Enjoying simple pleasures, is one of the many things Britton has taught me.
I read this quote recently and I loved it so very much…
“Why does a man hope to be found brave? Because we remember, if only faintly, that we were once more than we are now.” John Eldredge
It's been a hard week of behaviors, and seizures, and hospitals. I needed to remind myself that my child, our children were born…whole! THIS... is not the life God wanted for any of them. How often has Britton typed that he is brave?
I don't know what he remembers of being whole, of talking? I don't imagine he remembers it at all. I do tell him, how he was a big talker, how he used big words. I don't know if it would be wise to show him videos of himself. (I'm not sure I can bear it.)
(A photo of Britton above)
The last few days I've struggled with the fear that I have lost him again. Behind glazed, far-away eyes, the boy who types is distant. The cruelty that is autism comes, burying him beneath unbearable pain. He copes with behaviors that are not explainable...at least not without words.
But the TRUTH is...he's not lost at all, he's buried and I must never quit digging.
"How many things have I let die, because of the never of it?"
I couldn’t stop thinking of how he phrased this admission. “The never of it.”
In the life of the vaccine injured, there are endless mantras we could begin with…the never of it.
Using a fork to eat. The never of it, seizure drugs that work. The never of it, friends that love you anyway, the never of it...being able to drive, the never of it...real purpose.The never of it…_______ you fill in the blank.
Britton didn’t give me the chance to respond to what he typed…which isn’t uncommon. I snapped a quick picture, barely before he hit "clear." I caught it before his words were permanently erased... but that had already been etched on my heart.
I need to add that Britton typed the first sentence, then he erased it. The next day he typed it again and erased parts of it. He typed more on it, erased it...struggled with....what he was trying so desperately to help me understand, I'm unsure of?
It was several days before he finished the thought and added the period. It must've weighed heavy on his mind...because he typed the first sentence three times before he decided to finish the thought. I expect it was something he had trouble exposing. I understand that. I need to write my emotional wreckage down, but I don’t always want to share what I’ve written. It feels too naked.
“The never of it” of life is hard on most of us. It’s why we celebrate BIG things when something we waited for manifests and it is indeed time to throw a party!
Autism parents know well how to pray for something...many many years can pass before the "miracle" appears. We also know how to celebrate, to be overcome with joy when the "never of it" finally ends and we see fruits of the labor!
Things that feel like they will NEVER happen, (using a fork instead of his fingers, dressing himself...on rare occasions, brushing his own teeth, staying in the family room instead of hiding away from all human interaction.) The perseverance, the prayers, or maybe the miracle brought it to pass? We celebrate, and that is one of the gifts of living with autism. Being grateful for tiny things, is created if you are to survive.
I pray for Britton’s healing every single day. Then I pray for the thousands and thousands of families that stumble through the "never of it." I pray for answers, and basically to grab some hope in this life of overwhelming difficulties.
The love, the love we hold in our hearts for our children, sustains us and though autism is a life of "the never of it" we never give up, never quit hoping, never quit fighting. When a young man with autism refuses to give up after all he's been through, who am I to quit just because of "the never of it?"
https://scavengers-of-hope.ck.page/0ba506d8e0
I wrote this in 2019...feels like a lifetime ago. The things that have changed are how rarely Britton types, and how the seizures have taken so much from him. I pray if you have a situation, and you feel like it may never end, that you hang on, knowing that giving up is not the answer. Because...God is who He says He is.
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The Chronicles of the Shadowlands
This is poignant, moving, plain sad. The anger that it stirs within because of the vax push by Pharma and government for so many years, causing this kind of heartbreak for too many, the ones who will always wonder about lost dreams, what might have been, ‘the never of it’. 😪
That goes for the parents and siblings who are also so deeply affected by the hard slog involved after an injury. So sorry to hear that Britton has become less interactive still due to increased seizures. Heartbreaking. My prayers and love go out to Britton and his mum and family. xx 😓🙏🏼❤️
My heart shattered a little reading this. The never of it.. has now touched my soul as well.
I am vaccine injured. They call it "minimal brain damage". I wonder what I would have been like, what I could have achieved if I were not how I have been made. Damaged immune system as well. Drug dependent for life. So many babies that I lost, that I never got to hold or raise.
The never being comfortable in my own skin, though I am learning to accept.
My oldest daughter is vaccine injured. Fortunately, not so severely, but she still struggles.
I watch my friend's only grandson with a tic following school entry vaccines. What has this done to his future.
The never of it.